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Helping Rare Disease Patients Find Their Voice
To help patients with a rare disease become advocates for themselves and others, the Food and Drug Administration is sponsoring its first “FDA Rare Disease Patient Advocacy Day” on March 1, 2012.
Learn more at, www.fda.gov/ForConsumers/ConsumerUpdates/ucm274357.htm
Watch the video, "understanding Rare Diseases", at www.youtube.com/watch?v=FURcQB0vQF4.

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